Special Needs Planning

Planning for a family member with special needs is crucial to ensure their lifelong security and well-being. Once an individual with special needs reaches legal adulthood, their circumstances shift significantly. They may face new legal rights, eligibility for government benefits, and financial planning needs. Understanding these changes is vital to safeguarding their future and ensuring they receive the support they require.

We have firsthand experience with this topic, as our sister, Shannen, has special needs. This is a topic close to our hearts, and we understand the unique challenges and considerations involved. Our knowledge goes beyond financial planning—we truly understand the importance of long-term security, care, and support. We welcome any questions you may have and are here to help guide you through the process with compassion.

Planning For a Confident Future<br/>

Planning For a Confident Future

The primary focus for special needs children is making sure they are in an inclusive, nurturing, and educational environment. As they approach adulthood, the planning focus changes.

Parents must address estate planning and guardianship to ensure continuous care and financial support. Estate planning involves creating a comprehensive strategy to manage and distribute assets, while guardianship planning designates a responsible individual to make decisions if the child cannot do so independently. 

Navigating Supplemental Security Income (SSI) and Medicaid<br/>

Navigating Supplemental Security Income (SSI) and Medicaid

Children with special needs often rely on needs-based programs such as Supplemental Security Income (SSI) and Medicaid, which have strict income and asset limits. Parents must be cautious to avoid disqualifying their child from these benefits.

Establishing a Special Needs Trust can be essential, as it allows assets to be managed for the benefit of the individual without jeopardizing their eligibility for government assistance. 

Special Needs Trusts

Continuous Care

Continuous Care

A Special Needs Trust provides continuous support tailored to the unique needs of individuals with disabilities. It ensures funds are used to enhance their quality of life, covering expenses such as medical care, education, and recreational activities while preserving their eligibility for government benefits. 

Protecting Assets and Benefits

Protecting Assets and Benefits

When a person with special needs inherits property, it could affect their eligibility for public benefits. A Special Needs Trust can hold the inherited assets, allowing the individual to benefit from the inheritance without compromising their access to Supplemental Security Income (SSI), Medicaid, or other essential services. 

What Can a Special Needs Trust Pay For?

What Can a Special Needs Trust Pay For?

A Special Needs Trust can cover a broad range of expenses that improve the quality of life for the beneficiary. The trust ensures that funds are used appropriately and do not interfere with public benefits. 

These may include:

  • Medical Treatments 
  • Rehabilitation Services
  • Educational Programs 
  • Personal Care Attendants 
  • Transportation 
  • Recreational Activities
Choosing a Trustee<br/>

Choosing a Trustee

Choosing a trustee for a Special Needs Trust is a significant decision. The trustee should be someone trustworthy, financially savvy, and familiar with the beneficiary's needs. 

This could be a family member, a professional trustee, or a combination of both. The chosen trustee must be capable of managing the trust assets effectively and adhering to the requirements to maintain public benefits. 

Challenges in Funding<br/>

Challenges in Funding

Funding a Special Needs Trust requires careful planning, especially if there are multiple dependents. Parents must balance the needs of all their children while ensuring the trust is adequately funded. 

Creating a budget that considers future expenses, potential inheritances, and other financial resources is essential. This process often involves consulting with financial advisors to develop a sustainable funding strategy.

Decision-Making for Special Needs Individuals

Power of Attorney

Power of Attorney

A Power of Attorney (POA) is a legal document that allows someone to make decisions on behalf of another person. It is a cost-effective option to grant authority over financial or medical decisions.

 

Establishing a POA can be a straightforward process, often completed within a few weeks, but it requires careful consideration of the responsibilities involved.

Guardianship

Guardianship

Guardianship is a more involved process than Power of Attorney and requires court approval. It is typically necessary when an individual cannot make decisions about their personal or financial affairs. 


Achieving guardianship in New Jersey can be complex, involving assessments and legal proceedings, which could take months. This formal arrangement ensures that a responsible person can properly manage the affairs.

Medical Decision-Making<br/>

Medical Decision-Making

Living Wills, advance directives, and medical powers of attorney allow individuals to express their wishes regarding medical treatment if they become incapacitated. These documents are crucial for ensuring that their healthcare preferences are respected and that trusted individuals can make medical decisions on their behalf. 

If a person with special needs has the capacity, establishing these directives can provide peace of mind for both them and their family.

Steffens Financial Corp. does not provide legal or tax advice. You should consult a legal or tax professional regarding your individual situation.

 

 

New Jersey Resources

Division of Developmental Disabilities (DDD)

The Division of Developmental Disabilities (DDD) is a government agency that provides services and support to individuals with developmental disabilities to enhance their quality of life and community inclusion. It offers resources such as case management, residential care, and vocational training to help these individuals achieve greater independence and integration. 

Learn more

                                        Public Partnerships, LLC (PPL)

Public Partnerships LLC (PPL) is a company that administers Medicaid-funded programs, including the Personal Preference Program (PPP), across various states in the United States. It facilitates participant-directed services, enabling individuals with disabilities and chronic illnesses to manage their own care plans and budgets.

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                                      Personal Preference Program (PPP)

The Personal Preference Program (PPP) is a Medicaid initiative that allows individuals with disabilities or chronic illnesses to manage their own care services, including hiring and supervising their personal assistants. This program promotes autonomy by giving participants the flexibility to tailor their care to better fit their personal needs and preferences.

Learn more

Frequently Asked Questions:

"What Issues Should I Consider for my Child with Special Needs?"

"What Issues Should I Consider for my Child with Special Needs?"

Healthcare, education, financial security, and legal protections are all imperitive to ensure your child with special needs has a secure and fulfilling future. Learn more below.

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Medicare vs. Medicaid

Medicare vs. Medicaid

The terms Medicare and Medicaid sound similar but are two very different things. Learn the differences in this informative article.
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When Special Care Is Needed: The Special Needs Trust

When Special Care Is Needed: The Special Needs Trust

A special needs trust helps care for a special needs child when you’re gone.
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